{"id":2589,"date":"2016-07-07T16:37:39","date_gmt":"2016-07-07T06:37:39","guid":{"rendered":"https:\/\/wimr.org.au\/?post_type=wimr_news&p=2589"},"modified":"2024-09-30T18:26:33","modified_gmt":"2024-09-30T08:26:33","slug":"new-partnership-grant-puts-carers-of-people-with-macular-degeneration-in-the-spotlight","status":"publish","type":"news","link":"https:\/\/wimr.org.au\/news\/new-partnership-grant-puts-carers-of-people-with-macular-degeneration-in-the-spotlight\/","title":{"rendered":"New partnership grant puts carers of people with macular degeneration in the spotlight"},"content":{"rendered":"

Vision researchers from The Westmead Institute for Medical Research have been awarded a new NHMRC partnership grant to enhance caregiver services for family carers of people living with age-related macular degeneration (AMD).<\/p>\n

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New NHMRC partnership grant gives boost to carers of people with AMD<\/figcaption><\/figure><\/figure>\n<\/div>\n

AMD is the leading cause of blindness in Australia. Approximately one in seven Australians over 50 \u2013 or one million people \u2013 have some evidence of macular degeneration.<\/p>\n

Despite informal carers providing 1.9 billion hours of care in 2015, Australian data shows that nearly two out of three informal carers are not accessing caregiver support services.<\/p>\n

The new research project, run in partnership with Macular Disease Foundation Australia (MDFA) and Carers NSW, aims to enhance the health and wellbeing of family carers by improving the design and delivery of existing support services and programs.<\/p>\n

According to the study\u2019s chief investigator, Associate Professor Bamini Gopinath from the Institute\u2019s Centre for Vision Research, caring for loved ones with vision loss can be burdensome and often leaves carers exhausted and at risk of health problems.<\/p>\n

\u201cThere is a lot of data that points to caregivers as \u2018hidden patients\u2019, at risk of poor outcomes,\u201d Associate Professor Gopinath said.<\/p><\/blockquote>\n

\u201cIn our previous study in collaboration with the MDFA we found a higher than expected prevalence of emotional distress including feeling sad, frustrated and\/or isolated among family carers of persons with late AMD. This finding underscored the difficulty of coping with the challenges related to assisting persons with late AMD.\u201d<\/p>\n

The project will be supported by almost $440,000 of funding over three years from the NHMRC, MDFA and Carers NSW. \u00a0It will include a telephone support group, a cognitive behaviour therapy program, and information about other available carer resources and support.<\/p>\n

The researchers will then evaluate the health and social outcomes, and the costs of running this intervention over a 12-month follow-up period.<\/p>\n

\u201cThis intervention has potential to be a valuable addition to existing caregiver services, by reducing the burden and distress among family carers of people with AMD, leading to improvements in their overall wellbeing,\u201d Associate Professor Gopinath said.<\/p>\n

\"\"\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0\"\"<\/p>\n","protected":false},"excerpt":{"rendered":"

Vision researchers from The Westmead Institute for Medical Research have been awarded a new NHMRC partnership grant to enhance caregiver services for family carers of people living with age-related macular degeneration (AMD). AMD is the leading cause of blindness in Australia. Approximately one in seven Australians over 50 \u2013 or one million people \u2013 have […]<\/p>\n","protected":false},"featured_media":2590,"parent":0,"menu_order":0,"template":"","meta":{"_acf_changed":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}}},"categories":[19],"class_list":["post-2589","news","type-news","status-publish","has-post-thumbnail","hentry","category-cat-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/news\/2589","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/news"}],"about":[{"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/types\/news"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/media\/2590"}],"wp:attachment":[{"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/media?parent=2589"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wimr.org.au\/wp-json\/wp\/v2\/categories?post=2589"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}